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Short Talks > Session
Short Talks - Diagnosis, Monitoring, and Patient Experience in Bleeding Disorders
Moderators
Bethany Samuelson Bannow, Amber Pruett
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Presentations
10:30 GLOBAL REACH AND CLINICAL IMPACT OF VWDTEST.COM: ADVANCING AWARENESS AND EARLY DETECTION OF VON WILLEBRAND DISEASE
Fernando F Corrales-Medina1,2, Robert F Sidonio Jr3, Veronica Flood4,5, Ana Boban6,7, Susan Halimeh8, María Teresa Álvarez Román9, Nathan T. Connell10, Laura Villarreal-Martínez11, Alok Srivastava12, Erik Berntorp13. 1Division of Pediatric Hematology/Oncology, Department of Pediatrics, University of Miami Miller School of Medicine,, Miami, FL, USA 2University of Miami-Hemophilia and Thrombosis Treatment Center, Miami, FL, USA 3Associate Professor of Pediatrics, Aflac Cancer and Blood Disorders Center, Emory University, Atlanta, GA, USA 4Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA 5Versiti Blood Research Institute, Milwaukee, WI, USA 6Haemophilia Center, Department of Internal Medicine, University Hospital Centre Zagreb, Zagreb, Croatia 7Zagreb University School of Medicine, Zagreb, Croatia 8Gerinnungszentrum Rhein-Ruhr (GZRR), Duisburg, Germany 9La Paz University Hospital, Madrid, Spain 10 Boston Bleeding Disorders Center, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, USA 11Dr. Jose Eleuterio Gonzalez Monterrey University Hospital, Monterrey, Mexico 12St. John’s Research Institute & St. John’s Medical College Hospital, Bengaluru, India 13Clinical Coagulation Research, Department of Translational Medicine, Lund University, Malmö, Sweden
10:42 ASSESSING AND DISCUSSING PAIN IN THE HEMOPHILIA CLINIC: ACCEPTABILITY AND FEASIBILITY OF THE PATIENT-REPORTED OUTCOMES MEASUREMENT INFORMATION SYSTEM (PROMIS) MEASURES OF PAIN INTENSITY, INTERFERENCE AND BEHAVIOR IN ADULT MALES WITH HEMOPHILIA
Tyler W. Buckner. University of Colorado School of Medicine, Aurora, CO, USA
10:54 CLINICAL DIAGNOSIS AND MANAGEMENT STRATEGIES IN PERSONS WITH BLEEDING DISORDERS OF UNKNOWN CAUSE: A SCOPING REVIEW
Evangelina Clark1, Ling-Yi Guo1, Diane Lorenzetti2,3, Rafal Asmaro4, Dawn Goodyear4,5, Natalia Rydz4,5, Julia Hews-Girard6, Roy Khalife7,8, Kelsey Uminski4,5. 1Department of Medicine, University of Calgary, Calgary, AB, Canada 2Health Sciences Library, University of Calgary, Calgary, AB, Canada 3Department of Community Health Sciences, Calgary, AB, Canada 4Division of Hematology and Hematologic Malignancies, Calgary, AB, Canada 5Southern Alberta Rare Blood and Bleeding Disorders Comprehensive Care Program, Calgary, AB, Canada 6Faculty of Nursing, University of Calgary, Calgary, AB, Canada 7Ottawa Hospital Research Institute, Ottawa, ON, Canada 8Division of Hematology, Department of Medicine, Ottawa, ON, Canada
11:06 COMPREHENSIVE COAGULATION PROFILES AND FIBRINOLYSIS ASSESSMENT AT THE POINT-OF-CARE FOR POSTPARTUM HEMORRHAGE MONITORING
Daniel Hoare1, Michaela Farber2, Seemantini Nadkarni1. 1Wellman Center for Photomedicine, Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA 2Department of Anesthesiology, Perioperative and Pain Medicine, Brigham and Women’s Hospital, Harvard Medical School, Boston, MA, USA
11:18 NOVEL FIBRINOLYSIS ASSAYS SHOW ALTERATIONS IN CLOT LYSIS IN ADOLESCENTS WITH HEAVY MENSTRUAL BLEEDING AND BLEEDING DISORDER OF UNKNOWN CAUSE
Ruchika Sharma1, Laura Ketelboeter2, Chad Skaer2, Manoj Paul2, Lindsey Hartland1, Kendra Malone1, Chao Xing3, Song Xhang3, Michael Wu4, Christian Kastrup2, Ayesha Zia1. 1Division of Hematology/Oncology/BMT, Department of Pediatrics, University of Texas Southwestern Medical Center, Children's Health Dallas, Dallas, TX, USA 2Versiti Blood Research Institite, MIlwaukee, WI, USA 3O'Donnell School of Public Health,UT Southwestern Medical Center, Dallas, TX, USA 4Division of General Internal Medicine, Department of Internal Medicine, UT Southwestern Medical Center, Dallas, TX, USA