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| Psychosocial Considerations in Aging Patients with Bleeding Disorders Kathaleen Schnur. |
Abstract
Advances in hemophilia care have led to increased longevity, resulting in a growing population aging with hemophilia and facing a distinct set of psychosocial and functional challenges. Many aging PwH are long-term survivors of the contaminated blood crisis and entered later life without expected financial, social, or emotional preparation. Evidence shows disproportionately high rates of depression and anxiety, alongside significant gaps in recognition within clinical care.
Aging with hemophilia reflects a cumulative burden of chronic pain, arthropathy, trauma, social isolation, and healthcare navigation demands. These factors interact to amplify symptoms, accelerate frailty, and disrupt identity and independence. Social determinants further compound risk and contribute to unmet needs.
Hemophilia Treatment Centers are uniquely positioned to respond through multidisciplinary care. This presentation outlines a practical framework focused on screening, assessment, support, connection, and communication. By leveraging team-based care with greater intentionality, HTCs can better address the full lived experience of aging patients and improve overall health outcomes.
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