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Thank you for attending THSNA 2026. The virtual meeting is now closed.
Thank you for attending THSNA 2026. The virtual meeting is now closed.
Presentation Details
| Implementing a Structured, Multidisciplinary Home Infusion Education Program for Pediatric Bleeding Disorders Julie Bascones, Branden Beria, Aimee Foord. Cure 4 the Kids Foundation, Las Vegas, NV, USA |
Abstract
Background: As the only pediatric hematology/oncology outpatient center in southern Nevada, we recognized the need to develop a formalized and comprehensive home-infusion education program for patients and families with bleeding disorders. Objective: To develop and implement a standardized, multidisciplinary, hands-on educational program to strengthen caregiver confidence and proficiency in administering factor infusions in the home setting. Methods: This quality improvement project was conducted in 4 phases: assessment, development, implementation, and post survey. During the assessment phase, nurses of our infusion center were provided with a survey regarding their current comfort level in teaching factor replacement. Based on the results of the survey, an education session was developed. The education session was conducted by the lead pediatric hematologist and all nursing staff attended. The education session involved introducing a specific scheduled time for this particular type of visit, providing clarity to staff as well as patients/caregivers reason for visit and expectations, introducing the stakeholders that would attend the visit, set objectives that each team member would review and educate, and goals of the visit. The pharmacy and nursing teams were also given education on bleeding disorders. Following completion of competency-based training, implementation involved designating two nurses to pilot participating in the specialized home infusion teaching clinic visit. Two patients along with their primary caregiver were interested in participating and were the two pilot patients in this project. A teaching visit was conducted and post surveys were completed and reviewed. Results: Assessment surveys from 16 nurses identified barriers including: Comfort level of performing factor teaching rated 1-5 (1 being least comfortable, 5 being most comfortable) with mean of 3, mode of 3. Comments included not being done often, no standard way to teach, and disorganization. Comfort level in administering factor with mean of 4 and mode of 5 with statements of confidence in administering the medication, except for variability of infusion time. Education session included number of patients affected in our community, specific patient examples, clarity in scheduling and ordering for this type of visit, checklists and goals guide for visit. Post survey results included: Pilot patients and caregiver: showed consistently positive experiences in all aspects of the visit. Comments included happiness of empowerment in treating their disease. Pilot nurses: results showed an exceptional rating for scheduling and clarity of new process, order clarity, and checklist of objectives to review during visit and documentation. Comments included offering patients a progress report to add to their medical chart to document the patients' own thoughts on the utility and success of the visit. Conclusion: Through a coordinated, multidisciplinary framework involving scheduling, nursing and provider leadership, a specialized pharmacist, registered nurse, and nurse coordinator, families received the structured instruction and support needed to achieve proficiency in home administration of factor concentrates. This approach facilitates timely treatment, reduces dependence on emergency or clinic-based services, and enhances family autonomy, empowerment and self advocacy in managing lifelong bleeding disorders. Ongoing quality improvement efforts will refine these sessions and extend training to additional nursing staff.
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No part of this publication may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the prior written permission of the author.